Rotating Header Image

Amazing Quote of the Day

Occasionally, someone will approach us and say something like, “I like what you’re doing. But what about the women who don’t survive?”

Today we had a beautiful and profound photo shoot that left both elli and I slack-jawed and dumbstruck with its intensity. During the course of the shoot, I heard this striking quote:

After you’re diagnosed, you are a survivor. Every day that you are alive, you are a survivor. It’s that simple.”

As we reach deeper into our celebration of survival, I wanted to take a minute to honor the survivors who are no longer with us. Thanks for what you taught us, when you were here.

A Lesson Learned: Inquiries Into Healing

Despite the relatively quiet nature of our recent online presence, the growth of this project is breathtaking. In recent weeks, we’ve found support from Metro Magazine, begun the incredible process of planning our first gallery opening (it’s October 1st–save the date!), and received some tremendous kudos from some unbelievable sources. By and large, it’s been a period of overwhelming growth, and we’re as proud as ever to be working on this project.

We’ve also learned a thing or two about what we don’t know. For example, in a recent post elli wrote:

to whatever extent we do or don’t admit it, and forgive me for opening up an ages old and epic debate – men have an impact on how we feel about our own beauty and strength.”

And boy, did it ever open up an ages old and epic debate. One of the people who chimed in was a reader who wrote:

I sent my friend [name omitted] your web page before I even looked at it…. We’re both lesbians, and men don’t, in fact, have any impact on how we feel about our beauty and strength. Not our brothers or fathers, not the men who want to co-opt our sexuality for their pleasure, not the men who over and over say, “You’re not even a little attracted to me?” Your statement is true only for straight and some omnisexual women. Not us. We also both are a bit taken aback that the photos seem to be decapitated, without heads and faces. Are they all like that?”

It was a comment that caused both elli and I to pause for a bit. We’d certainly never meant to exclude anyone. It was simply that no lesbian women (or bisexual or transgendered, for that matter) had come forward to share their experiences with us. We cannot tell that story until someone helps us to do that. And though we assured our reader that the images on our site aren’t the final product (in fact, some of our models requested that we not share their faces online), she wasn’t able to find common ground with our project as a “lesbian living in a heteronormative patriarchal world”.

Our reader had a point. For all the common ground that survivors share, the healing process is as unique as the individual doing the healing. I began to wonder what we didn’t know about what it means to survive breast cancer, or any trauma for that matter. And to make sure we don’t limit the answers with our own filters, we’d like to open this forum up to you. In just one minute…

In my own life, nature has always directed me toward my most profound moments of healing. As a shutterbug, I tend to capture snapshots for future reference. Here are a few of my favorite lessons:

In a lush evergreen forest, a tiny shoot grew from a long-fallen log, and I learned that we all have the power to nourish the world that will live beyond us. At that moment, I promised I would live with this truth in mind.

On a rugged Pacific beach, I stumbled upon this informal work of art. On that gray day, I remembered how delicious it is to create; to harness one’s playfulness and use it to find magic. In my heart, I  thanked the anonymous artist, and vowed to pass their gift on to others.

As the storm rolled in, my instinct was to look to the clouds, dark and churning. The man who I love gasped. “Look at the way the sunlight catches the waves.” I learned that day that even on life’s most turbulent waters, a light is always shining. But to see it, one must look.

It was just last year, staring in to the depths of the Royal Gardens at Keukenhof, that I realized I was different from most, but not alone. For the first time, I felt beautiful.

And now it’s your turn. What does healing look like to you? Who helps you to heal? Does it come from within, or do you find it around you? Post your comment, or shoot us an email. Send us photos, or drawings, or writing that illustrates your process. Who or what helps you to find who you are in your purest form?

What is your process? How have you healed?


a celebration . . . of scars

the male role & perspective in the battle: interview #1

sneak peek from a shoot on july 18, 2010

two days ago, after many hours of shooting for this project, i took a few minutes to sit in my kitchen and just . . . . cry.

i cried for the women who didn’t win their battle with cancer.  i cried for their families.  i cried with fear of the odds that i would face this in my own body.  i cried out of awe and pride at the women who fought the battle and came out stronger, still fighting – because beating cancer isn’t the only thing on the agenda.  they have life altering decisions to make about how to rebuild their bodies, rebuild their lives, rebuild their relationships, and fit back into the puzzle.  i cried out of gratitude and absolute admiration at the grace and courage it has taken for the women we have met to come and stand in front of our cameras and not only show us their scars, but be willing to show everyone their scars.

our single goal in starting this project was simple, and we achieved it the moment we started:  to start a conversation about what the scars mean and why they are beautiful, and why we should embrace them rather than hide them, worry about them, or be embarrassed by them.  we achieved the goal the first day, and we continue to set new goals and try to reach new audiences with every new reader and supporter that finds us.

somewhere along the way, a new perspective clicked into view for me about how important the role of men can be in the healing process.  we have talked with many women and in almost every story, there has been a man somewhere in the picture to love, support, carry, soothe, and respect her – whether it was the boyfriend of a best friend, or a father, a son, a husband.  to whatever extent we do or don’t admit it, and forgive me for opening up an ages old and epic debate – men have an impact on how we feel about our own beauty and strength.

we started collecting some of the stories as told by the men who have weighed in on our project and some of the men the survivors we have worked with have introduced us to, and we will be sharing many of them to feed the conversation we have started.

the first of these is in interview form with josh “danger” berg, a friend and supporter of the project and grandson of norma hirte, a 20 year breast cancer survivor.  josh was one of the men in her life who accepted and loved norma unconditionally, and found an opportunity to look her in the eye, express that acceptance and love, and put her at ease.

josh berg as a teenager w/grammy (jurassic park tie)

q:  what is your grandmother’s name?
a:   norma engen hirte, she had her maiden name changed to her middle name after marrying my  grandfather. but everyone just called her grammy or sometimes i would indulge in calling her gram or gram cracker.

q:  do you remember when your grandma was diagnosed with breast cancer?  how old were you?
a:    it was the summer of 1988 so i was 10 years old.

q:    do you remember any specific details about that time in her life?
a:   that year was her and my grandfathers’ ruby anniversary, we got a new dog named… ruby. my uncle pete, mom, brother ryan and i all lived with my grandparents at the time. she had her own very successful catering business on top of running a large household. she still always found time to help me with my english homework.

q: how close were you and your grandma? what parts of her are part of your daily life? what did you learn from her?
a:  we were very close. my grandmother and i kept no secrets. having been raised in a traditional norwegian-american farmstead there were some things we didn’t talk about… but it was still known.  i got my manners from my grandmother; along with wicked ballroom dancing and polka skills, a bunch of cooking techniques and her coolness under pressure.

q:  was it discussed with the rest of the family, was it explained to you, or was it kept secret or quiet?
a:   i don’t know if it was necessarily kept secret but it was one of those things we came to not talk about. i visited my grammy in the hospital and got to hold her hand shortly after surgery. i remember strongly the sight and smell of iodine and how it discolored her skin.

q:  what kind of treatment did your grandma have, do you know, or do you remember?
a: she went through aggressive chemo treatment and a single mastectomy.

q:   did your grandma survive breast cancer?
a:  yes, she was a 20 year survivor when she passed away of a brain aneurism.

q:  you were faced with an opportunity to express support – kind of a pivotal moment for Gram, even though you weren’t aware at the time what your reaction would mean for her – can you describe what happened?
a:  my son and i had moved in with her after a life event and i had found her bra pad in with my laundry out of the dryer. i took it to her and she looked really embarrassed i had seen it. i looked her in the eye and told her she doesn’t have to be embarrassed around me about that. i got to tell her then how strong i felt she was for having survived such a difficult thing. the survival rate wasn’t very good back then and i remember how harsh her treatments were. i had always felt proud of how valiantly she fought that battle.

q: what did you think it was?  did you understand what it was, or what it was for?
a:  yep, i knew. i had seen it before and grammy had a catalogue of products like it i saw when getting the mail one time.

q:  what do you think that moment meant to her, at the time?  what was her reaction?  how did it help you understand what she was going through?  was she able to answer your questions openly?
a:  i hope that she was able to know that i accepted what happened a long time ago and that i never thought it to be anything she should be ashamed of. it helped me understand that even though the event had happened nearly twenty years prior, her mastectomy still was a source of pain for her.  we always talked openly when we discussed things like this and it was a learning and strengthening event for us. she was more comfortable speaking about her surgery around me.

q:  what is your perception of how breast cancer affects women?
a:  i think ultimately it comes down to who is affected. some of the survivors i know of weren’t prepared for the after effects of their surgery and it is something they feel the need to hide completely. others i know have taken ownership of what happened and they count themselves proud survivors of a battle that some aren’t able to win still.

q:  what do you think about the scars of breast cancer survivors?
a:  i think that everyone has scars, either internally or externally. i think that those scars help paint the portrait of your life. for instance, i have several scars from my more rough and tumble years and a few from my world famous cycling accident a few years back. when people ask me about my scars, memories come flooding back to life as though i had lived that experience yesterday. i think that there is a great power in the scars of the survivors of breast cancer. you have the ability to remember the strength you felt when you found that you defeated a very powerful opponent. i can only hope if i ever have a similar battle that i can do so with the courage and determination that my grandmother showed me.

q: how do you think your grandma would feel about the of scars project, if she were here to see it  today?
a:  haha, my grammy was very demure; i don’t know if she would have approved but i know she would have loved the spirit that you have. and until the day she was taken from us she supported every survivor or woman going through treatment like a rock. i think she would have secretly loved it though.

Your Bra Could Be Famous

We need your help.

Our next photo subject, Shelley, is a fireball.

Breast cancer, to her, was a call to action. In the months and years after her diagnosis, Shelley decided that the key to healing was to help others to heal. “I believe I am a survivor for a reason,” Shelley says, “so being able to talk about my experience has really helped me to come full circle.”

To that end, Shelley has been involved in lunch-ins, cancer walks and the Pink Ribbon Mentoring Program at Mayo Clinic, where she was treated for her cancer.

One of her favorite causes is the 1 in 8 Foundation, an organization founded in honor of the late Linda Eastman McCartney, the wife of Paul McCartney and a tireless activist who succumbed to breast cancer in 1998. Committed to providing early detection for all women, the foundation inspired Shelley to embark upon a project called Bras Across Minnesota to raise money for the cause. Basically, the idea is to collect enough bras (and a small pledge with each) to stretch across the state. Similar projects have mobilized in other states, and if enough bras (and donations) are collected to stretch across the United States, enough money will have been raised to provide nearly half a million mammograms to women who could not have otherwise afforded them. It’s an amazingly ambitious project, and one that undoubtedly makes a difference.

When we began discussing the project artistically, we wanted to incorporate a visual representation of the work Shelley has done, and so we’ve decided to collect bras. Pink ones are best, but we’ll take whatever you’ve got. So, hit that lingerie drawer, and pull out the ones you no longer wear, and send them to us:

The Of Scars Project
PO Box 68172
Minneapolis, MN 55418

If you live in the Minneapolis/St. Paul area, and prefer for us to pick up your old bras, shoot us an email and we’ll arrange it with you.

Bras should be in clean condition, and you’ll get massive brownie points if you can find some cheesy pink ones for our li’l’ photographer selves. All collections must be made by Friday, July 16th, 2010. When we’re done with the photo shoot, we’ll donate the bras to Shelley.

Extra massive brownie points for making a donation to Bras Across Minnesota while you’re at it. Details for donations can be found on that Web site, or you can email us to find out more.

All emails should be sent to ofscarsproject (at) gmail (dot) com.

Just think about it. Your bra could be famous!

circle the words that describe you.

our intention with this project was, in the very beginning, to take photos of the taking apart and putting back together of women in the various stages of having and surviving breast cancer.  while that remains true and is our starting point with the women we work with, we realized we would want to present the images as more than just photos.   there are things we want to do with the photos in the editing process, and we have lots of ideas about that.  there are also other mediums we’d like to work in – like video and audio.

as we went into our shoot with ann (see also the previous post about ann and frida the wig) we were reading through the notes in her file.  we send each of the models some questions to help us understand how she feels about herself, her surgery, her process, her body.  her image.  one of the things we ask is for them to circle words from a list of adjectives that help describe the way they feel about themselves.  we read ann’s list and were just beside ourselves when we found that she had done the exercise but then went one step further by writing in her own list of words.  we were reading the list in the car on the way to the shoot and as we began taking pictures, her words were echoing and inspiring us.  we have a lot of pictures from that day that we want to use, but one in particular grabbed my attention – even though i almost passed it over when pulling out the main images i wanted to work with for the shoot.   i set it aside for a few days and wondered what to do with it, until it occurred to me that it needed to be the backdrop for her list.  her wonderful, amazing, inspiring list.  i love the photo because you can’t tell if she is laughing or screaming – and paired with the list, it could be either.  i know what she’s doing because i was there, but i’m not telling.

while we are keeping most of the images from the shoots under wraps to exhibit in a physical space all at once, we do want to share peeks of what we are up to.  this is the piece i have been working on for ann’s list.  i honestly don’t know if it is finished yet, or how i feel about it – please feel free to comment and let me know what thoughts and emotions it stirs up for you.

Frida

Recently, the Of Scars team did a photo shoot with Ann, a survivor with a fiery spirit and an obvious zest for life. Accompanying Ann on the shoot were two of her allies in the battle against cancer: her husband; and Frida, a flouncy bob-cut wig.

Named for renowned painter Frida Kahlo, Ann’s wig became a symbol of defiance throughout her cancer journey. “I was diagnosed at around the time that the movie Frida came out,” Ann explained. “I liked her strength as a woman.”

Frida’s appearance on the shoot leant a bit of levity, to be sure. But I was surprised and touched by her presence, as well. Rather than looking at breast cancer as a loss of identity, Ann chose to create for herself a new and deliberate persona. With Frida, Ann harnessed her own strength and passion, and wore it for all the world to see.

Again and again, this project makes me proud to call myself a woman.

“Call Me Warrior”

The really moving thing about this project so far has been that it moves in its own direction, on its own accord. When I put out the all-call for Haiku, I anticipated that I’d be inundated with silliness, which was okay with me. I needed a pick-me-up, and I’d selfishly decided to use this blog to create one, just for me.

There wasn’t any silliness. In fact, there was only one submission, which was surprising to me, considering that the number of visitors to our page has soared recently. But that one entry was so unbelievably well-crafted that it took my breath away. Reader Katy actually emailed this disclaimer along with her work of art:

I am not a writer.”

Come again? Of course you are.

Here’s what Katy wrote:

My first mammogram
I avoid my reflection
Goodbye double D

I miss my nipples
Nursed my babies for six years
Changed me forever

Chemotherapy
A battle ground well traveled
Call me warrior

Day number 19
Had total body hair loss
Still have my feet warts

I, Wonder Woman
My comeback is slow but sure
I wear pink with pride

Hair on my head grows
The flowers bloom in the spring
Shave my legs agai
n”

Wow, Katy. I will call you Warrior. And a writer. And just in case everyone isn’t convinced of the effect that women like Katy have on the world, let’s take a minute to see what her 7-year-old son wrote:

Mama lost her hair
Like dead autumn leaves it fell
Looks like a fighter”

There aren’t really words for that, except that it’s true. I hope today you recognize that, Survivors. You look like fighters, and it’s breathtaking. Wear it with pride.

(Enjoy your coffee, Katy!)

Levity, Coffee and Fighting Cancer with Haiku

Let’s talk about Spring. It’s a pretty celebrated season, really. Frank Sinatra sang about it. It’s got fluffy bunnies and chicks working for it. Snow melts. It starts to get warm. Pretty solid reputation for a season, if you ask me.

But today, at the Of Scars headquarters in Minneapolis, Minnesota, spring looks like this:

Yeck.

I’ve spent my morning slowly checking tasks off of an endless to-do list, and when I got to “Write a Blog Post”, I was keenly aware of the fact that we’re often sorta serious here at Of Scars. And, well, it’s a gray day, and doing serious things on a gray day can feel very, very heavy.

I’d prepared a stirring, sweet and certainly life-changing post about the value of artistic expression in the healing process. The post would likely have won us a Webbie, catapulting our cause into the center of global consciousness and raising enough money to not only cure breast cancer, but to eradicate hunger and end all wars. It was a good concept, but as I sat down to write I realized that on such a gray day, my topic was a serious thing and therefore very, very heavy.

And so writer’s block took over, and though I forced myself to type through it, all that came out was this Haiku:

I WRITE ABOUT BREASTS

MORE THAN ROMANCE NOVELISTS

OR HUGH HEFNER’S STAFF.

Hm. Not exactly what I’d intended. But silly writing exercises sometimes open enormous floodgates, and so I sat down to try my touching, evocative piece once more.

No dice. At this point, I’d flipped on the Haiku centers of my brain, which is a dangerous thing. See, before I went freelance, my last 9 to 5 gig involved working for a man named Tom Petters, who was basically a small-scale Bernie Madoff. After the FBI raided our office, my coworkers and I coped with the stress of an imminent layoff by writing deplorable quantities of Haiku. It seems that by writing Haiku today, I’d somehow sent myself into a sort of frenetic flashback that enabled me to do nothing of productive value. At this point, I could only write Haiku. And so, instead of my earth-altering blog post, I wrote:

I HOPE THAT YOU KNOW

THAT YOU’RE WORTH MORE THAN YOUR BREASTS.

THAT’S WHY WE DO THIS.

Eh. Well-intentioned and true, but boring. Besides, the bizarre Haiku Flashback Effect had also made me feel a bit irreverent. So I kept going:

IF I LOST MY BREASTS

I WOULD USE MY PROSTHESES

TO THROW AT SALESMEN.

I have no idea where that one came from, but it certainly made the idea of future car purchases a bit more entertaining.

So it’s come to my attention that my brain has refused to write a very, very heavy post on such a dreary day, and any attempts I make to go against my brain’s intention will result in a barrage of horrible, horrible poetry. I will save the heavy post for a lighter day.

Instead, I’ll offer you the opportunity to stoop to my level, and together, we will put this arts in healing concept into practice. We will fight breast cancer with Haiku. Plus, I’ll offer you a shot at a prize for participating. Compose a Haiku about how breast cancer has touched your life or the lives of those you love. You can be funny, serious, or sweet. The point is just to express yourself.

Email your Haiku to ofscarsproject(at)gmail(dot)com, and we’ll send a $10 gift card to Caribou Coffee (a tremendous supporter of the fight against breast cancer) to one randomly selected entrant. Poems must be submitted by 10 P.M. on Thursday, May 13th, and must include the entrant’s first name and contact information (we’ll keep it private–it’s just so we can send you your treat if you win). We’ll post some of our favorites, along with the winning entry, on Friday, May 14th.

By no means do we mean to trivialize or make light of the experience of fighting breast cancer. However, study after study shows that laughter can improve quality of life as well as outcomes when it comes to cancer. Plus, a 2006 study published in the Journal of Pain and Symptom Management indicates that artistic expression through art therapy can reduce cancer patients’ pain and anxiety levels. Cool stuff, huh?

So in honor of defying breast cancer (and gray days), let’s have some fun and express ourselves.

Go!

Happening

My 10-year-old daughter was given a fun assignment in school today: write a “Six-Word Memoir”.

The urban legend goes that Ernest Hemmingway was challenged to write his life story in six words, and he responded with “For Sale: Baby Shoes, never worn.” Hm.

Apparently, this Six-Word Memoir thing is kind of a big deal. Four years ago, SMITH Magazine Online began collecting Six-Word Memoirs, and has published several books of responses to the challenge.

Everything about it amazes me. The idea of simplifying all the complexities of human existence at any given moment down to six little words? Woah. The copywriter in me becomes breathless at the conciseness of it all.

So I put a challenge out on Facebook, as any geek would do. And people responded!

My favorite was this one, by the amazingly talented Jon Herchert: “Miracles happen everyday. You are happening.”

Just think about it for a minute. Right now, at this moment, you are happening. You are occurring, and unfolding, and being. Beginning and ending and existing and expanding. You are a verb. You are.

Happening.

And isn’t it good?